There is support out there but sometimes you just don’t know where. Hopefully these links may help. Some are local with contact detail specific to the St Helens area, whereas other are national.
The local offer details all the support and courses offered in our local area.
By law, every local authority has to publish information about what services are available in their local area for parents, children and young people aged 0-25 with special educational needs and disabilities (SEND). This includes information about education, childcare, leisure activities etc.
31-35 Baldwin Street, St Helens, WA10 2RS
St Helens Carers Centre can help with filling in the following:
Carer’s Allowance (CA) is paid to a carer who looks after an ADHD child more than 35 hours a week and earns under a certain threshold. Conditions are: they must receive DLA at the middle or highest care rate if they are under 16 years old, and for those aged 16 to 64, they have to be in receipt of the daily living component of Personal Independence Payment. You will not be able to receive Carer’s Allowance if you are claiming the State Pension or certain other benefits. Visit: www.gov.uk/carers-allowance/eligibility You can download a claim form or to complete your application online @ www.gov.uk/carers-allowance/how-to-claim For further information, contact: Carer’s Allowance Unit. Mail Handling Site A, Wolverhampton. WV98 2AB Tel: 0345 608 4321 Email: email@example.com (Monday to Thursday, 8.30am to 5.00pm; Friday 8.30am to 4.30pm) www.gov.uk/carers-allowance/overview.
Disability Living Allowance (DLA) helps with the cost of caring for an eligible ADHD child, under 16 years of age, needing extra looking after and having had these difficulties for at least three months. Just describe your child at his/her worst. Do not understate the problems and be particularly be clear about night-time issues e.g. incontinence, difficulty going to sleep, waking up all the time, tantrums, fits, lack of sleep, etc. (the highher benefit care rate for DLA is only paid for those with night time problems). It will aid you to obtain a Disability Register Identity Card for your application. Visit www.gov.uk/disability-living-allowance-children/how-to-claim or order a printed claim pack by calling the DLA Helpline: Tel: 0845 712 3456 Textphone: 0845 722 4433 (Monday to Friday, 8.00am to 6.00pm) Visit www.gov.uk/disability-living-allowance-children/overview to find out more about DLA.
The Carers Centre can help you with benefit advise, Carers assessments, training courses, emotional support… check out their website or drop in to find out all the services they offer.
Listen4Change is the St Helens Parent Carer Forum. The Forum is very informal and meets in the daytime and evening 8 times a year. The Forum is open to all parent carers within the St. Helens area.
Dr Russell A Barkley 30 Essential ideas you should know about ADHD. This is an American doctor speaking at a Parents convention. He explains ADHD and it’s difficulties in a clear and non patronising manner. This is a link to YouTube, there is about 2 hours recorded but it is definitely worth watching.
Cerebra is a charity dedicated to helping families with children with brain conditions. They have lots of helpful information eg guide for finding financial help, lending library, conditions information, sleep service and advise.
Cinema Exhibition Card (CEA)This is a cinema discount card for carers. Any responsible one adult who goes to the cinema with the child who has a disability gets in free. To be eligible the child or young person must be in receipt of DLA. Application forms can be picked up from cinemas. Prove of DLA must be sent together with processing fee of £6 and passport photo of child. Please note children must be 8 years or over to be eligible https://www.ceacard.co.uk
Disability Facilities Grant is available up to £30,000 in England for your ADHD/SEN under 18 year old child without parents’ income being taken into account https://www.gov.uk/disabled-facilities-grants
Disabled Students Allowance: For going into further education https://www.gov.uk/disabled-students-allowances-dsas
Family Fund: helps families who are raising a disabled (ADHD) or seriously ill child or young person aged 17 or under.
The child must present very severe conditions and not just ADHD. Visit their website
Merlin’s Magic Wand – worldwide charity for children arranging magical days out at Merlin Entertainments attractions, such as LEGOLAND Resorts®, SEA LIFE Centres and Madame Tussauds https://www.merlinsmagicwand.org
Merlin Pass and annual passes for other attractions such as Chessington World of Adventures, Legoland, Alton Towers, Thorpe Park, the London Eye, London Dungeons, Madame Tussauds, and Sea Life Centres can be applied for via the Short Breaks & Aiming High application form. The funding is only available to the eligible child.
Personal Independence Payment (PIP) is replacing DLA for people aged between 16 and 64 years of age (there are no current plans to replace DLA for children aged under 16). Those already receiving DLA will not be automatically transferred to PIP, but will have to make a claim for the new benefit when invited to do so. To qualify, individuals will have to score a certain number of points relating to twelve activities i.e. preparing food, taking nutrition, managing therapies or monitoring a health condition, washing and bathing, managing toilet needs or incontinence, dressing and undressing, communicating verbally, reading and understanding signs, symbols and words, engaging with people face-to-face, making budgeting decisions, planning and following journeys (used in the mobility component test). Visit www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-points-system
If you are claiming for the first time, ask to be sent a ‘How your condition affects you’ form. Contact: Personal Independence Payment New Claims, Post Handling Site B, Wolverhampton. WV99 1AH Tel: 0800 917 2222 Textphone: 0800 917 7777 (Monday to Friday, 8.00am to 6.00pm) Visit: www.gov.uk/pip/how-to-claim For general information Tel: 0845 850 3322 Textphone: 0845 601 6677 (Monday to Friday, 8.00am to 6.00pm)
IPSEA – Independent Parental Special Education Advice is a registered charity operating in England. IPSEA offers free and independent legally based to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND). They also provide on the SEND legal framework to parents and carers, professionals and other organisations.
Special Needs Jungle has created a huge range of resources, articles and information for parents and carers of children with special needs, disabilities and health conditions to better enable them to navigate the special needs system.
IASS – St Helens Information Advice and Support Service (IASS) is a statutory service that was formally known as the Parent Partnership Service.
St Helens IASS provides impartial and confidential information, advice and support to children and young people with special educational needs and disabilities (SEND) and their parents. The service covers all aspects of Education, Social Care and Health related to SEND.
A child/young person does not need a formal diagnosis; we can help if you feel there is a Special Educational Need.
St Helens IASS offers information, advice and support both before and after a child or young person has began the process for an Education, Health Care (EHC) Plan and to people that receive support without a Statement or EHC Plan.
Office open Monday – Friday, 9.30 am to 5.00 pm
Age Range: Children and young people 0-25 years and their parents.
Local offer: www.sthelens.gov.uk
Contact provide information and guidance. They have helplines and online information on issues such as medical information, education, benefits and family life, and their parent resources cover a range of topics including health and social care services.
Driving and ADHD
ADHD is one of the many conditions listed on the Gov.uk website in Health Conditions and Driving.
It states that you may need to tell DVLA if you have ADHD.
You should check with your doctor if you’re not sure if your ADHD affects your driving and you must tell DVLA if it does.
You can be fined up to £1,000 if you don’t tell DVLA about a medical condition that affects your driving and you may be prosecuted if you’re involved in an accident as a result.
Travel and Medication
The Home Office has confirmed that travellers with ADD/ADHD can carry up to 900mg of methylphenidate based medication (Ritalin, Concerta, Equasym and Medikinet fall into this category) while travelling into or out of the UK without requiring a Home Office Licence. However, if you need to carry more than 900mg you will need a licence.
More details about drug licences can be seen here.
Think U Know is an education programme from the National Crime Agency’s CEOP Command. It aims to ensure that everyone has access to this practical information – children, young people, their parents and carers and the professionals who work with them.
Alongside the Thinkuknow website the programme provides educational resources, including films, cartoons and lesson plans, to help professionals raise young people’s awareness.
Not Fine in School has been created in reaction to the growing number of children who are struggling to attend mainstream school.